I am getting a bit fed up of hearing people say to me that everyone gets tired. The levels of fatigue that I get with my ME are so intense. They are not anything like the tiredness I felt before I was ill. I physically cannot keep myself awake at times. Its hard to sleep over night waking occasionally but getting about 8 hours and then to wake up feeling as though you have not had any sleep at all. I spend a lot of my time feeling exhausted as if I have just completed running a marathon when in fact all I have done is walk down the stairs.
I know people are only trying to help but I cannot stress enough that I am not just a little tired, I am exhausted a lot of the time.